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October 26, 2016
Serving Indiana |
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What are 504 Plans and Individualized Education Plans? Scroll down for the answer. |
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Dear Friend, Our Chapter staff feel re-energized by the cooler weather and the fantastic turnout for the 10th anniversary Walk to End Lupus Now! Indianapolis at Military Park. We saw many of you at the Walk and recognized the stellar fundraising efforts of over 90 teams! While we raised over $75,000, this is lower than in past years – the good news is that the chance to earn great prizes continues through the end of October. There is still time to collect donations and to raise our Walk revenue! Please remember to be on the lookout for a “redemption certificate” from Turnkey sometime the first week of November – you will need to click inside that email in order to claim your incentive, which will be mailed to your residence. To view 2016 incentives, click here. Let’s keep working toward our $135,000 goal. We have two events to get excited about this Fall: Our 3rd annual Purple for A Purpose event will once again bring youth (those living with lupus and those who have a family member with the disease) and parents/family members together to discuss management of issues common to people with lupus. Again this year, attendees will be led through a painting session with Park Tudor’s Kathy Campbell on Saturday, November 19, at Park Tudor’s Middle School in Indianapolis – we can’t wait to unveil the winning painting this year! Also, our November "Living with Lupus" seminar is scheduled for Tuesday, November 29, in Valparaiso. Dr. Karen Kovalow-St. John (rheumatologist) will be discussing managing the chronic pain associated with lupus. Lynda Schoberth (registered yoga teacher at Bleu Lotus Yoga) will lead a seated/chair-supported yoga session. Don’t forget we also now offer weekend yoga/tai chi classes that are no cost to a patient plus one caregiver/support person. You can find out more information and view the schedule here. Finally, the season of workplace giving campaigns has begun. Together with your company, you can work to benefit our community, fund groundbreaking lupus research, and help those living with lupus and their families. Small tax-deductible donations every month through your workplace help significantly and we hope that you will consider this option, if available to you. Thank you for your support of our Chapter.
Morgan E. McGill, CEO |
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'Purple for a Purpose' Youth Experience |
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'Purple for a Purpose' Youth Experience is an event for children and teens ages 7-19 who have lupus or have a family member with lupus. Parents are welcome to attend with their children.
This educational and fun event will be held on Saturday, November 19, from 1:00-4:00 pm, at Park Tudor Middle School media center. One-hour breakout and Q&A sessions will be held with the following guest speakers: Youth who have lupus: Dr. Kathleen O'Neil, Professor of Pediatrics, Indiana University School of Medicine Chief, Section of Rheumatology, Riley Hospital for Children Youth who have family member with lupus: Dr. Ellen Go, second year post-doctoral fellow at Riley Hospital for Children Parents of youth impacted by lupus: NaKaisha Tolbert-Banks, licensed clinical social worker and owner of D.U.O. EmpowerMEnt Services The last two hours are spent in an instructor-led canvas painting activity. After the paintings are finished, attendees vote for their favorite painting done by the youth attendees and we use a photo of that painting as our Chapter holiday card and the cover of next year's seminar programs. |
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All In The Family |
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For Lori Kurtz and her life partner, Renee (Ren), autoimmune
disorders are no stranger to the family, which includes their dog, Brooklyn. As Ren battles MS, Brooklyn fights her own battle –canine symmetrical lupoid onychodystrophy
(SLO). That’s right, the pattern of inflammation is similar to lupus,
giving the condition its “lupoid” designation.
For Brooklyn, symptoms started early; she was still a puppy when her nails began to crack abnormally. Lori says, “Every vet had a different answer; we had to pay to have her anesthetized to have her nails cut back to the quick,” which made for a very slow healing process. Brooklyn didn’t like wearing her booties but she did it anyway. Each time there was a nail situation, “she was house bound except to potty,” says Lori, a grade school guidance counselor. When a new veterinarian came to her vet’s office, Lori and Brooklyn were sent to a dermatologist who then diagnosed Brooklyn with canine SLO. According to Lori, Brooklyn now takes seven pills at night to treat her nail condition and her dandruff. Not only has her coat improved, her nails only split on occasion and no longer put Brooklyn out of commission. Brooklyn spent her first year taking a puppy obedience class and spending time in her puppy playgroup. “After that we worked with a private trainer,” says Lori. While not certified, Brooklyn’s role is much like that of a companion dog. At home, Brooklyn instinctively assists Ren who has balance issues from MS. According to Lori, Brooklyn helps Ren when she falls down, and steadies her when she walks, which helps to improve Ren’s confidence. With an upbeat personality, Brooklyn attracts attention in public, helping people focus on her instead of on Ren who is self-conscious. “Brooklyn always has a smile on her face,” says Lori, and “it seems like everyone she meets smiles when they see her.” Perhaps Brooklyn’s empathy for Ren and others is largely a part of her own battle with SLO. Either way, Brooklyn is both a lover and fighter. For more information on companion dogs, click here. |
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Featured Events |
Your Ideas Matter! |
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We are very excited to be able to offer Gentle Yoga and Tai Chi classes for people with lupus and one caregiver or support person. When: *October Tai Chi class will be held the 5th Saturday on October 29; December Tai Chi class will be held the 3rd Saturday on December 17. Location: COST IS FREE BUT REGISTRATION FOR FIRST CLASS IS REQUIRED. After initial registration, the classes are drop-in. LEARN MORE
'Purple for a Purpose' Youth Experience This event is for children and teens ages 7-19 who have lupus or have a family member with lupus. Parents are welcome to attend with their children. This educational and fun event will be held Saturday, 11/19, from 1:00-4:00 pm. on the campus of Park Tudor School in Indianapolis. You don't want the kids to miss this one. LEARN MORE "Living with Lupus" Seminar - Managing Chronic Pain Our November "Living with Lupus" seminar is scheduled for Monday, 11/28, in Valparaiso. This seminar features speaker Dr. Karen Kovalow-St. John who will discuss managing the chronic pain in lupus. The discussion will be followed by a Yoga session led by Lynda Schoberth of Bleu Lotus Yoga in Chesterton, Indiana. Click here to register.
Make Your Mark is our local community fundraising program. It gives everyone a chance to get involved in supporting the fight against lupus. If you have a love for cooking, biking, performing or even just getting together with friends for a good time, you can turn that passion into a wonderful way to raise money for a great cause --and to Make Your Mark in solving the cruel mystery of lupus. Sign up to create your own Make Your Mark event. Michael Osborn of Pierceton, Indiana, will be making his mark with a Book Sale on Saturday, November 12th, at Bethany Fellowship Church, 522 W. Market St., Warsaw, Indiana. More than 10,000 books will be available, and a portion of the funds raised will benefit The Lupus Foundation, Indiana Chapter. For more information, please contact Michael Osborn.
"We make a living by what we get, we make a life by what we give." -Winston Churchill The holiday season is upon us. Please celebrate generosity and the spirit of giving by participating in #GivingTuesday! On November 29th, the Tuesday after Thanksgiving, donate to the Lupus Foundation of America, Indiana Chapter, and help us support lupus patients, caregivers, and families in Indiana. #GivingTuesday is about ordinary people coming together to do something extraordinary. Even with a small donation, you can help us provide your community with lupus education, awareness, and resources for lupus patients.
The Lupus Foundation, Indiana Chapter is thrilled to partner with Chili's Give Back Program. Dine in at any Kentucky or Indiana Chili's location and tell them you would like your meal to benefit The Lupus Foundation, Indiana Chapter. They will donate 15% of your pre-tax purchase to US! It's that easy. Chili's Give Back Program begins on Tuesday, November 1, 2016 and continues through January 31, 2017.
The Lupus Foundation, Indiana Chapter is proud to partner with your Indiana Pacers to help raise funds for the fight against lupus. We're selling tickets for the Pacers vs. Charlotte game on Monday, December 12th, so show your Pacer pride and lupus fight by purchasing tickets from us today! Upper Balcony: $17.00 each Lower Balcony: $23.60 each Deadline to purchase tickets is Mon. Nov. 14th.
Don't forget that beginning on January 1st, 2017, the Indiana state lupus license plate will be available to purchase at your local BMV office. A portion of the sales from the lupus license plate will benefit the LFA, Indiana Chapter! |
NW Indiana Needs YOU! The Lupus Foundation of America, Indiana Chapter is now seeking to fill Event Committee member roles to brainstorm new fundraising ideas for NW Indiana. Members will also assist with event planning and implementation. Our NW Walk Committee is typically comprised of 10 volunteers who meet at the Crown Point Methodist Church monthly, beginning in February. Each meeting lasts approximately one hour and we do like for members to be present for each meeting. Our LFA, Indiana Board has tasked us with creating a new event to replace the Crown Point Walk to End Lupus Now! event (due to a competing Chicago Walk and poor Walk revenue for NW Indiana in 2016). A mix of seasoned and dedicated committee members and a few new faces with new ideas will help bring a successful fundraiser to the Crown Point Area next Spring. If you have interest and time and are willing to assist, contact Lisa Kelly or Morgan McGill, or call 1.800.948.8806.
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Facilitators Wanted |
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Be a Support Group Facilitator We are looking for several dedicated individuals to lead our support group meetings! We are currently in need of co-facilitators for existing support groups in Ft. Wayne, Lafayette, and Indianapolis West. We're also hoping to start new groups in Evansville and southeastern Indiana and need additional co-facilitators for these groups. Facilitators will need to attend a 4-hour training session which will be held on a Saturday in November or December. You do not have to have lupus to be a facilitator. Click here to read the Facilitator Role Description If you're interested or would like additional information, please contact Debbie Campbell. |
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Lifestyle |
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Walk to End Lupus Now! |
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 What a beautiful day we had for this year's Walk to End Lupus Now! Indianapolis at downtown's Military Park --and the rain stayed away! Together we raised more than $76,000.00 to support the families we serve. We heard from this year's Walk Chair, Carla Day, and other guest speakers including board member (and father to Shea Evans, National Advocate) Steve Evans who delivered a heartfeld message about the reasons why we raise money with each Walk event. We also enjoyed the sounds of "Toy Factory" on the main stage. Our Team T-shirt Contest was more successful than past years with over ten submissions! We again salute Ashley Gatlin's team, Angels for Ashley, for creating the winning design (see our Walk pictures on Facebook). But the Walk was about YOU, too, and all that your support has achieved. Over 980 Walkers signed up to walk in 2016 online and we checked in over 150 day-of-event walkers. You formed 109 fundraising teams --way to go! You also helped bring in $7,050.00 more in corporate sponsorships than in 2015. Whether you were able to join us in person or not, it's your light that leads our way. Thank you! We can't wait to do it again next year --please reach out to our LFA, Indiana Office if you would like to join us on the 2017 Walk Planning Committee, now forming. It takes effort, believe us, and we could not have delivered on October 1st without our fabulous Walk Planning Committee and dedicated volunteers. Email Lisa Kelly if you have interest. We plan to hold an informal gathering this Fall for new members and those wishing to help again! If you walked, there is still time to fill out this brief onlien survey that takes only 3 minutes to complete. We need your feedback to raise our goal next year. Please click here.
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Click the button below to become a Champion for Hope with your monthly gift of $10, $15, $25 or more to the Lupus Foundation of America, Indiana Chapter and make a difference in the lives of those affected by lupus. Your support will help bring us one step closer to our vision of a life free from lupus.
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The health complications and treatment needs associated with lupus can lead to frequent absences from school and extracurricular events. Teachers and others who supervise your child's activities need to be aware that your child's absences could interfere with schoolwork deadlines and other responsibilities.
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Lupus Foundation of America, Indiana Chapter |
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